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Instead of an end to my ordeal, there was a new diagnosis to deal with. I never explored my growing body, and never did more than kiss until I was an adult. I just wanted to escape from my life. Little did I know my secret was storing up problems for the future, in the form of a fear of physical intimacy. I'd found out the worst, and it hadn't destroyed me. That very night we said we loved each other, and within the week we slept together.

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Casey. Age: 21.
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I would need an operation when I was older to remove the malformed organs in case they gave me cancer.

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Samara. Age: 25.
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I grew my own vagina

I've learned I have to accept myself, physical shortcomings and all. Over the years, I pulled away from any man who got close to me. I realised then that I didn't need to be afraid of being close to someone, I just needed to be with the right person. All this and the fact that I would never agree to an internal examination meant that nobody had realised that as well as my womb and ovaries, my vagina wasn't developing properly, either.

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